No Answers, No Cure: Cystic Fibrosis
“This is Stephen… Stephen has Cystic Fibrosis…”
The first of a series of short documentaries whose purpose is to raise awarness and activism for the cure of genetic disease.
GET INVOLVED!!! JOIN THE FIGHT!!!
Now more then ever, little people have the tools and the power to initiate GREAT SOCIAL CHANGE!!!
I receive many letters everyday from regular people just like you asking me what it is they can do to help The Fight.
If you want to help, it takes nothing more than five minutes of your time.
Simply copy/paste the following into the message box in the share video screen:
An amazing documentary that really needs your help… Please Rate, Comment, Favorite and Forward!
If you can send that message with the video attached to as many people as possible, even if it is only your friends list, you would be helping every man, woman and child who has to suffer with genetic disease tremendously.
I am but one person and due to YouTube communication restrictions - I can only do so much.
WE need YOUR help!!!
Perhaps together we can accomplish more than just having a video posted on the front page…
God Bless
Create a video blog…instantly.
Things sure are different in America, here in Ireland all our medical care & medicines is cover with a medical card. If not it would cost up to €80,000 a year for it.
The big problem we have is organ donations there not enough people donating.
I myself is waiting 4 a double lung transplant being on the waiting list now nearly 2 years I’m 27 witch is a gr8 age 4 some1 with CF but I know if I don’t get them soon I will not make my 30th birthday!!
January 29th, 2009 at 18:46This definitely hit close to home. My neighboor/best friend has CF. I know all the statistics but to hear someone that deals with tons of cases everyday actually say it out loud made it that much more real. I only hope that one day CF will stand for Cure Found.
January 30th, 2009 at 00:53wow that was terrible,as a doctor she should help you,i don,t agreed with you,is better take 2-3 hours to “be healthy” cause is important to fight,instead of giving up.
January 30th, 2009 at 16:42I’d feel more inclined to listen to my doctor if she didn’t damn-near kill me a couple months ago…I’ve made it this far, and frankly death is better than taking 2-3 hours out of my day to “be healthy.”
February 2nd, 2009 at 16:50but you need to take good care of you,and as you know is very important to take the medication not when you feel like it…
February 5th, 2009 at 02:59but as doctors tell you to do:):)
I’m pushing 20.
February 6th, 2009 at 07:41how old are you?
February 8th, 2009 at 05:21I have CF and I feel so bad for all these kids….I must have a very weak case, because I live life like a normal adult/teenager. I get out, I’m relatively healthy, and I only take my medication when I feel like it…
February 8th, 2009 at 12:43was trough gregory that i became aware of C.F
February 9th, 2009 at 06:22was the first time i heard about this desease.for me greg will be allways a role model he did fight with everything he had.
he never give up of fighting,not only to breath well,but also for is dream…
is wonderfull voice will remain forever in the hearts of those who admired him…
there is an association with is name
who keeps the fight against C.F
REST IN PEACE
only this year i saw a documentary were they did talk about C.F,a portuguese tv channel made a documentary about people who suffer from C.F and how they live day by day with the desease,some of them were lucky to be send to a spanish hospital to make a lung transplant,one of them is now 38 years old and she,s doing fine,in my country lung transplant are totally a disaster,if the people who as it,don,t go to spain they will die,cause my country is helpless when cames to threat people with C.F :((
February 11th, 2009 at 01:15my heart is with all of you,i feel helpless
February 11th, 2009 at 17:12i wish i could do more than just say to everyone,everything will be ok…
iam from portugal,is impossible to tell how many people suffer from C.F…
most people here doesn,t even know what C.F
is.that makes me so sad.iam very aware
i do care,i do fight to let people know how hard and bad this desease is…
is in all of you that i found the strenght
for doing it,none of you are alone in this fight…god bless you all
Your vest looks so much more advanced then mine=p but it really is scary hearing someone say that this thing you have is going to kill you.. There’s not better way she could have put that? Can’t we just find a cure now to prove her wrong?
February 12th, 2009 at 02:52Your vest looks so much more advanced then mine=p but it really is scary hearing someone say that this thing you have is going to kill you.. There’s not better way she could have put that? Can’t we just find a cure now to prove her wrong?
February 13th, 2009 at 21:34For more information on cystic fibrosis, simply type in Gibson Vance promoting Cystic Fibrosis in your youtube search engine
February 16th, 2009 at 17:01Im so sorry to all of you who has lost someone to Cysitc Fibrosis. My good friend Mike is only 23 and is at the final ending stage of Cystic fibrosis, he is Dying and coughing up blood! I **** to see people in pain and suffering slowly!
February 19th, 2009 at 07:19hi,
February 21st, 2009 at 09:44i’m currently doing my medical degree. i just wanted to ask whether any CF’ers here has had gene therapy to alter the genetics. we have been told from lectures that that is quite succesful but its just patients are reluctant because of the ethics and trusting a doctor to do something that essentially to an avereage person is changing the genetic code.
Stephen, have you tried any natural cures?
February 23rd, 2009 at 05:24Gregory Lemarchal…
was 23…
April 30, 2007.
Gone forever of CF.
February 25th, 2009 at 02:02my sister died of this at the age of 20… she died last month
February 26th, 2009 at 06:43When you get to the American Express Member Project home page type UZHKO0 into the search box…it will take you right to it.
Come on people, $1.5 million could be AWARDED for ORGAN DONOR AWARENESS if we can win the VOTE!
PLEASE TAKE THE TIME, CAST YOUR VOTE AND PASS THE WORD.
March 1st, 2009 at 14:21There is a great project to increase DONOR AWARENESS that ends Septemebr 1, 2008. American Express (credit card company) will fund the project with the most votes and I would LOVE for it to be the DONOR AWARENESS project.
It was written by an 18 yr old girl that received a transplant and is living with CF cystic fibrosis.
GOOGLE IT. It is called Member Project “Second Chances” Mobile Organ Donation Awareness.
Please VOTE FOR IT, pass the word to everyone and increase DONOR AWARENESS!
March 3rd, 2009 at 01:44If you want to help, it takes nothing more than five minutes of your time.
Simply copy/paste the following into the message box in the share video screen:
An amazing documentary that really needs your help… Please Rate, Comment, Favorite and Forward!
If you can send that message with the video attached to as many people as possible, even if it is only your friends list, you would be helping every man, woman and child who has to suffer with genetic disease tremendously.
March 5th, 2009 at 16:59i dont think i am. i dont think im sick. i hardly ever think about my CF, till i have to take my meds.
March 6th, 2009 at 18:17PinkFish raises a good point though, as well as proper diet and medication, physical activity and mental fitness are extremely important…. Mind over Matter isn’t going to prevent you from getting sick, but like PinkFish points out, if you are convinced that you are sick and weak, you will be sick and weak.
March 8th, 2009 at 12:55Wow - how is your cousin doing????
March 9th, 2009 at 19:00